Wednesday, February 6, 2008

The Great GERD Mystery

Today I'm feeling: Good.

Ran 2 miles this morning -- my first run since the 5k on Sunday. My legs had been hurting a little bit, so I took it easy today. I actually did some weight lifting yesterday. Again, nothing too heavy. It had been almost 2 months since I'd done any lifting, and I figured I should get back into it, if only because I really don't want my shoulders to fall asleep next time I have a PET scan.

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I had a follow-up appointment with the Gastro doctor on Monday.

A little background: I turned 40 on June 8th. It was a Friday. The following Monday, I went to see the doctor about my bronchitis. (I maintain that once I turned 40, I started to fall apart.) Over the next month and a half, I went back two more times because the bronchitis wasn't going away. In late July, while on vacation with Isabel's family, I could barely make it up the stairs without losing my breath, so I saw a doctor and was diagnosed with pneumonia.

It cleared up fine, and then in October, I started feeling a kind of shortness of breath again, more like a tightness in my chest behind my sternum. I had an x-ray and a CT scan, and the doctor sent me to a Pulminary specialist. He gave me a breath test, which didn't turn up any problems, and my blood oxygen levels were good. (I was still running during this time with no problems.) The CT scan showed a spot on my lung and an irregularity in a lymph node in my chest. He was fairly certain all of that was left over from the pneumonia. We scheduled a follow-up CT scan for January to make sure the node was going back to normal.

In the meantime, he asked me to keep track of when I was feeling that breathlessness/tightness. It became obvious pretty quickly that I was getting that feeling about an hour after I ate. The symptoms were consistent with GERD, Gastro-Esophogeal Reflux Disorder. I was put on Nexium and sent to a Gastro specialist.

Eventually, I had an Upper GI endoscopy done, so the Gastro doctor could look at my esophogus and stomach. Everything looked OK on the scope. (In fact, I had the scope done the day I heard about the NHL diagnosis.)

When I met with the Gastro doctor on Monday, he said it seemed like there were two issues going on at once: I definitely had symptoms of reflux, and I'll stay on the Nexium. But he couldn't find any explanation for the breathless/tightness feeling.

I asked if it could be related to the swollen lymph node in my chest, and he agreed that it could be, though he wouldn't say for sure because that's not his area of expertise. Well, in my reading over the last few days, I've found that it's a common symptom of NHL to have a node in the chest swollen enough so that it bumps the trachea or other things in the chest and gives those feelings of breathlessness or tightness.

Fascinating. It seems the mystery may be solved. It's obviously not affecting my lungs (the 5k proved that), but it feels like it is.

And while that's still not confirmed, it's nice to have something close to an answer for why I've felt that way for a few months. I can't blame anyone for a misdiagnosis; the lymph node swelling after pneumonia is a very reasonable explanation, and the other GERD symptoms were there, too. And already having heard about one irregular lymph node from October, I was prepared to leap into action when another one popped up -- lots of people may have just ignored it. Runners get swollen nodes all the time from leg injuries, from what I've read, and they're usually dismissed as part of the lifestyle.

So, in a sense, my chicken-wing-habit-induced GERD might have helped me catch the NHL a little earlier than I might have otherwise. Thank you, my weak esophogus!!!!

4 comments:

christine said...

Very interesting stuff, it is so true though you want a diagnosis so you know your not going crazy!! You know your body, that happened with me, i have had every test imaginable, gone to so many doctors for the last 2 almost 3 years, body scans, bone scans, MRI's, shooting the dye through me, nothing, then finally a dr. said it could possibly be a compound fracture in my lower back that never healed right,,hmmm, makes sense, (i had fallen in the shower), i said "i'll take that one"! :), made sense, everything else didn't, so...im hoping that that was my "40" moment, cause August is coming soon:(, anyway...

Continuing our prayers and staying positive ,take care Bob,

Oh and by the way, one surgeon wanted to do surgery, yeah, he had been suspended for drinking "on the job" thankGod my friend had worked at that hospital just my luck!!!

xxooChristine
P.S. sorry if i bored you!

Lymphomaniac said...

Oh, you didn't bore me. I love hearing about other people's medical issues -- beats listening to me talk about my own so much.
Bob

Christine W-B said...

When I was a kid I was scantly aware of my 'insides' unless something was going wrong, which was usually a minor tummy ache. If I was doing something athletic or very exhilarating, I noticed my heart pounding and my lungs working, but most of the time, I took the existence and function of my internal organs completely for granted.

Now I find myself married to a 50-year-old and am about to turn 49 myself, and who we are on the inside -- literally -- seems to preoccupy us more and more. The last few years have been a kind of squishy trip to heightened self-awareness as well as an opportunity for intimate contact with impressive diagnostic tools, which are usually damn cold.

Hey -- why can't it be more like going to a spa? Warm robes, a heated floor? With the Baby Boomers joining the ranks of the AARP, I see a huge opportunity here. Spend a day getting a battery of tests with breaks for fresh pressed veggie juice, a facial, a hot stone massage? I think I could cope with post-Sigmoidoscopy discomfort much better if I could go straight to the sauna afterward. Recovering from the indignity of invasive tests would be a breeze if I were glowingly exfoliated.

Come to think of it, this kind of thing probably already exists in L.A. (sigh)

Off the topic of health, we just voted on Super Tuesday and when we showed up at the polls, the ballots were ENORMOUS. There were only the pres. candidates and very few propositions, but the thing must have been 11" x 17". They use very large print. It is sheathed in a folder for privacy's sake, so the folder laid flat is double the ballot size. (Forests are dying here, people!) While they will be read by a computer, the paper ballots will be saved.

It was like voting at preschool, where they have those enormous picture books. You just join the arrow halves by making a mark with your big crayon! And then you have milk & cookies.

It made me feel young again... -- cwb

christine said...

Hey Bob,
Just got our ribbons today, which was real quick, have mine on now, did you like the story of the drunk doctor? yeah just my luck, staying positive and keeping you in our prayers,,have a great weekend!!

xxooChristine