Tuesday, November 19, 2019

The Follicular Lymphoma Foundation

Good news for Follicular Lymphoma patients: yesterday was the launch of the Follicular Lymphoma Foundation.

The FLF was begun by Nicola Mendelsohn, who is a Facebook's Vice President for Europe, the Middle East, and Africa. She was diagnosed with FL in 2016, watched and waited for a year, and then did chemo. Things look stable now.

Her story is very familiar to a lot of us. She'd never heard of Follicular Lymphoma. She had no symptoms. She was married with 4 kids. She went back to work after she found out. She found a support group on Facebook (of course) and learned from others.

And, using her huge influence, she started a foundation to raise money for research. It's the first ever foundation for just Follicular Lymphoma -- no other lymphomas or other cancers involved.

If you're tapped into the online FL community (I certainly am), you know that the launch of the FLF was a big deal yesterday. Mendelsohn was interviewed on TV, and a number of magazines published stories about her.

Though the foundation is based in London, its major initiative will be to work with international organizations to find a cure for FL. Certainly, no matter where the research is taking place, it will help all of us.

This is a good thing. Head over the the FLF website and take a look around.

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