The Follicular Lymphoma Foundation has posted its annual survey. Please consider responding to it. You can find it at https://survey.theflf.org/s/flf-global-patient-survey-2026.
The survey is an important source of information about FL patients and our needs. It's a little bit different every year, and reflects what is on the minds of the patients who take it. This is because FL patients play a major role in designing the survey.
The survey should only take about 10 minutes (I can confirm -- it actually took me about 8 minutes), and it is available to any FL patient, no matter where in the world they live.
You'll find some basic questions about yourself, plus questions about CAR-T and bispecifics (not how much you know, but about access to these treatments), plus questions about decision making, Quality of Life, treatment goals and outcomes, and the kinds of support you have received (and wish you had received). It's about your experience as a patient -- there are no wrong answers.
The survey results will be shared publicly on the FLF website and on its social media channels. It is also shared with oncologists, researchers, and others who need to know what is important to FL patients, so they can make sure their work is aimed at what matters.
And from a patient perspective, I think the results can help us connect to one another, even if we never know the names of the others who took the survey (it is anonymous). There's a kind of comfort in reading that hundreds of other patients feel the same way you do about treatment, or maybe have the same issues with access. We feel less alone, even if we're just looking at numbers.
Your response won't take long. It will be a big help to lots of people, and may help improve some lives, right now and in the future.
Please consider taking 10 minutes to respond: https://survey.theflf.org/s/flf-global-patient-survey-2026
Thank you.
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