I'm back!
You probably didn't even know I was gone, but I'm back from a week in Arizona, about 2500 miles from my home. My wife and I spent a week in Sedona, the Verde Valley, and the Grand Canyon.
Anyone who has been to the Grand Canyon will tell you that words can't describe it and pictures can't capture it. But I'm going to give you a picture and share some thoughts anyway.
My wife and I had actually planned a trip to the Grand Canyon almost 30 years ago. I was going to Phoenix for work, and we had hoped to both go and spend a day or two at the Canyon. My wife was pregnant at the time with our oldest, and about a month before the trip, the doctor put her on bed rest because of a complication. Not only no travel, but no getting out of bed for more than a couple of minutes at a time. It was a very stressful few months. But mom and baby stayed healthy, and we had a beautiful baby boy.
So now, almost 30 years later, we had the chance to try again, and we took that opportunity. We traveled with a group called Road Scholar. They aren't sponsoring the blog or anything, but I'm going to mention them because we've enjoyed our trips with them. They handle the details and make it easy for us to travel. We're at a point in our lives where we are happy to let someone else book our hotels, plan our meals, and do the driving. We just show up and enjoy ourselves.
As I said, words can't really describe something like the Grand Canyon, considered one of the seven natural wonders of the world. And really, the details don't matter. But I will say that my wife and I spent a small amount of time on the Bright Angel Trail that goes down into the Canyon. We didn't go far -- less than a mile of the 16 mile trail. It was very hot and we were feeling the thin air. But we'd learned that less than 1% of the people who visit the Grand Canyon ever go below the rim. We felt like we had to have that experience.
Even going just a few hundred yards down the trail gives you a completely different perspective. You see things that you can't see from the rim. Your view is completely different. You become a part of something that 99% of the people around you are not a part of.
And for me, that's an important part of being a Cancer Survivor.
My wife and I are getting older. And with age comes the usual slowing down. One or the other of us seem to have a new doctor or a new medication or a new diagnosis every six months or so. We're still reasonably healthy. But we know that can change. We want to experience some things now while we can. For us, that means making travel a priority.
I mentioned the 30 year delay in seeing the Grand Canyon for a reason. I think lots of us put off doing things that we'd always wanted to do. For us, life got in the way. We had three kids, and dealt with everything that comes with having kids. They tend to take up your time, and your priorities change. And that's fine.
But then cancer comes along, and priorities shift again. There are so many more "what if" thoughts that come into our heads. Sure, I'd like to travel , but what if I pay for this trip to [insert your dream trip here] and the Follicular Lymphoma comes back? What if I feel awful while I'm traveling? What if I'm so worried about it all that I can't really enjoy myself?
We got tired of the "what if" thoughts and decided to just go with it anyway. There's always a "what if." We can't let that get in the way. Because there's one thing even worse that feeling unwell on a trip. It's looking back in 10 years and saying "I wish we would have done it anyway." If the Lymphoma isn't going to go away, we just pack it in the carry-on bag with the sunscreen and the granola bars. There's no sense in sitting at home staring at each other -- me, my wife, and the disease. It's coming with us. But we're all going.
Because that's what Survivorship is all about -- deciding how you will live your life after the diagnosis.
You are the one who decides.
For us, we have decided that there's too much of the world we haven't seen, and we want to see it while we can.
Maybe you're not able to see the Grand Canyon, for whatever reason. You can't walk down from the rim and get a new perspective on the world.
But I'll bet there's plenty of the world you haven't seen that's already all around you.
My wife tells the story of living just outside Washington DC. One year when she was in her 20s, her brother had returned home and the two of them went for a walk in downtown DC. They were walking near the Washington Monument when they realized that neither of them had ever been to the top of the monument in their whole lives, despite living 10 miles away. So they want to the top, and they saw the beautiful views of their hometown.
They didn't travel 2500 miles to do it. They traveled 10. And they changed their perspective and saw the world in a new way.
That's Survivorship. It doesn't have to take a lot.
I hope you'll do something fun today, maybe something you've put off for a while. I hope you'll do something to change your perspective on the world and your life. If you are able, I hope you'll start planning that trip you always wanted to take.
You are the one who decides what your life will be after diagnosis. Don't worry about the disease. Bring it with you and have a great time.
4 comments:
Hi Bob, It sounds like a magnificent trip for you and your wife. Better late than never! Your idea of survivorship and "getting out there" is exactly what I needed to hear today. Thank you from this long time follower. -Barbara
Hi Barbara. I'm glad I could provide some inspiration. Don't lose that feeling. Keep moving forward.
Bob
Hi Bob, Glad you had a good trip to the Grand Canyon with Road Scholar. We've been twice once on our own and later with RS. As you said (& we agree) it's nice to leave the planning part of the trip to someone else. Our last trip with RS was to Costa Rica. That's a nice one, too.
I'm now in year ten since diagnosis of NHFL and doing fine. For some reason I've been moving away from researching, reading, keeping up with NHFL ... I've kind of put it on the back burner, which is nice for someone who over thinks & worries too much. Not having to need treatment for about four years now I find reassuring that maybe I will live to my 80's. When I originally started on this journey my first remission lasted just over 2 years, putting me in that darn category of highly likely not making it ten years. I then had a SCT (my own) & later a few localized radiation treatments for pesky lumps that randomly came up. Anyway, your blog is still my go to, just not as often now and I appreciate your humour as well as research. Thank you for that and keep enjoying that life of yours & take more trips!
Warm Regards,
Shelly
Hi Shelly. I'm so happy to hear from you! And I'm glad you are giving yourself some space from FL. You've earned it. I'd love to hear about your Costa Rica trip -- it's on our list. Seems like something we should do soon while we have the energy. Take care of yourself.
Bob
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