FLF Webinar

As I said last post, I'm still going through some posts that I had saved up for a while. This one is a video from the Follicular Lymphoma Foundation.

The FLF was founded a few years ago, after Nicola Mendelsohn was diagnosed with FL. Mendelsohn was a regional Vice President of Facebook at the time (she is now Head of the Global Business Group for Meta). She had a hard time finding information about the disease. Eventually, she had used her position and her connections to help create the foundation, which raises money for FL research.

They've had some new initiatives recently, including a "Support Hub" on their website, with resources, patient stories, and ways to connect with other patients.

Anther initiative is a series of webinars about Follicular Lymphoma. You can sign up to attend them live, or watch them later. This video I'm sharing is a recording of their first webinar, called "An Overview of Follicular Lymphoma."

Like all of the resources on the FLF web page, it's pretty good. As the title suggests, the webinar gives some basic information about FL. (The plan is to get into more specialized topics in future webinars.) It features Dr. Mitchell Smith, the Chief Medical Officer for the foundation, as well as Dr. Jessica Okosun and Dr. Brian Hill,both FL experts.

The webinar covers topics such as:

• What is follicular lymphoma?
• How does it affect your body?
• How is FL diagnosed?
• What happens next, after diagnosis?
• What are the treatment options?

One of the nice things about this webinar is that it is aimed at patients and caregivers. I know that a lot of the videos I post and link to are meant for doctors and other cancer professionals. So these use some simpler language to describe the concepts, treatments, etc.

The webinar also features some questions from patients, which is always interesting.

The webinar is about 44 minutes long. You can sign up to get on the FLF email list and get notified about other upcoming webinars and FL news.

I hope you enjoy the video. More to come soon.