Lymphoma Survey

I'm encouraging all of you to take this year's Lymphoma Coalition Global Patient Survey on Lymphomas and CLL.  It's available in 19 different languages, and should take about 15-30 minutes.

A small amount of time to possibly provide some big help.

The survey is sponsored by the Lymphoma Coalition. This is an organization made up of 81 different lymphoma-related organizations from 52 different countries. Their goal is to work together to increase awareness of lymphoma research, patient support (the coalition sponsors World Lymphoma Awareness Day every September), and problems. Some of those problems exist in separate countries, but a lot of them exist worldwide, so having a group that brings them all together helps all of us. they are especially interested in equity -- making sure everyone, no matter where you live, has the same access to information and to treatments as everyone else.

That's where the annual survey comes in.

By getting information from people all around the world, the coalition is able to make some comparisons, and highlight where we all need to do a better job of awareness and access.

The survey can be taken by anyone over 18, lymphoma patients or their caregivers. All responses are confidential, without your name attached to them, and all are important. More information is available on the first page of the survey.
 
 It took me about 15 minutes to do the survey. I was asked questions about issues like treatment, side effects, and other experiences related to the disease. Not really difficult questions, and nothing I haven't thought about before.

The last survey they did was in 2018, and about 6600 lymphoma patients and caregivers took it. The Coalition prepared separate reports for any country that had more than 100 people respond. You can read the reports here.

Thanks for taking some time to do the survey.