Monday, August 21, 2017

Not Knowing What to Say

Someone I care about a lot was diagnosed with cancer a few weeks ago.

I remember those first few weeks myself. It was a very tough time. For me, the first 10 days or so was such a whirlwind -- getting the diagnosis, telling my young children, getting a bone marrow biopsy, seeing a specialist -- there was no time to think about it all, even as I was in the middle of it all. Once things slowed down a little, that's when things got real. That's when the fear really kicked in. That's when I held it all inside and fell into a deep, black well. It was not a good time.

My wife also remembers all of that, and, being a wonderful person, has been buying and mailing cards to our loved one since her diagnosis.

I bought a card, too, a few weeks ago. I felt like I should send one just myself, not one from our whole family.

But I haven't sent it. I just didn't know what to say.

Which is so strange. I mean, if anyone should know what to say, it should be me, right? I've heard the words "You have cancer." I've been through the testing, and some treatment, and the deep, dark well. I know.

But I've also been through all of that other stuff that comes with a cancer diagnosis -- the people saying nothing, or saying dumb things, or saying the exact wrong thing on the day that you really didn't need to hear it, and it throws you into another deep, dark well.

Fortunately, I saw my loved one yesterday. We don't live near each other (which is why we've been sending cards). And I got a chance to give a big hug (which often works better than any words can) and at least get a sense of how things are going (without coming out and asking, because we all get that question more then we want to hear).

Fortunately, my loved one is blessed with a what I think of as an Irish Outlook on the world -- knowing that life is hard sometimes, absurd most of the time, and best met with a big dose of humor. And an understanding that sometimes people say stupid things when they don't know what else to say, and that they mean well. Face-to-face, it was an easy conversation. My loved one is handling things.

But it still bothers me that sometimes I don't know what to say. Not just because I've been through this, but also because I've written a few thousand words about cancer every week for almost 10 years.  I learned that lesson, too, long ago -- sometimes people don't now what to say, but they say nothing, or they say something stupid. But in the end, they're saying what they think is the right thing to say.

Not many of complain about the words I use here, so I'm happy about that. But just in case, I'm sending a big hug to all of you, just in case. Sometimes that's better than words, anyway.

7 comments:

Anonymous said...

Thanks for the hug Bob. I needed that!

William

Popplepot said...

I remember that dark well so vividly Bob, thankfully I found the rope ladder that my friends and family encouraged me to climb. I find some days still I walk to the well and look in ,some days I ponder to long and others I move on quickly.
Another great article Bob give your loved one an Irish hug from me and a promise I will pray for them if that's ok with you and them.

Anonymous said...

I understand that place, still visit from time to time. As far as "what other people say", by far the best advice I read regarding the subject came from author David Rakoff;

“But here’s the point I want to make about the stuff people say. Unless someone looks you in the eye and hisses, ‘You fucking a**hole, I can’t wait until you die of this,’ people are really trying their best. Just like being happy and sad, you will find yourself on both sides of the equation over your lifetime, either saying or hearing the wrong thing. Let’s all give each other a pass, shall we?
-David Rakoff

Remember that, and try to be a calm center in the eye of this storm.

Shelly said...

I hear you, Bob, it is difficult to know what to say to someone who is facing this disease. I have a close family friend that was diagnosed with stage 4 pancreatic cancer in January. When I don't hear from him, I get scared that the worst is happening and have difficulty bringing myself to reach out (text, email, snail mail, phone) to him. But I do, like you, I sent him an email meme of a huge teddy bear giving him hugs and told him I don't know what to say but that I am thinking and praying for him. He really appreciated the simple message. You can't let fear of saying something stupid paralyze you, just reach out with a simple message, I'm thinking of you, or I'm sending hugs to you. In the end, you don't want to feel like you should have done/said more. I love getting and giving hugs, they speak volumes. When I was diagnosed my adult son started giving me these hugs that didn't end for a minute or two and he is still continuing. I feel what he's saying and I'm hugging him right back just as hard. <3
Shelly

Lymphomaniac said...

Popplepot, after I wrote "Irish humor" I thought about you. I'll pass along the prayers -- always appreciated.
Bob

Lymphomaniac said...

Thank you, Anonymous, for the David Rakoff quote. We'd all be better off with some empathy and understanding these days. We're all way to quick to assume the worst.
Bob

Lymphomaniac said...

Thanks, Shelly. I'm a big fan of hugs myself -- my wife says that's what won her over. And they do go a long way when words aren't easy.
Wouldn't it be great if we could all meet up some day? I'd have big hugs for all of you.
Bob