Monday, March 17, 2008

An update of sorts

Happy Saint Patrick's Day.

Here's a St. Patrick's video for you. Hope you enjoy.

And a bit of St. Patrick's day trivia for you: St. Patrick wasn't Irish. He was born in Scotland, and his mother was from a well-known Roman family. So his father was Scottish and his mother was Italian. Sound familiar? (It's true. I looked it up in the Catholic Encyclopedia.)
The leprechauns visited our house this morning, as they usually do on March 17, playing their usual tricks -- the toilet water had turned green, and the kids' breakfast juice and milk had turned green, too. And once again, I couldn't catch the leprechauns in the act. (We had a little scare when we heard Strudel crunching on something during breakfast. Thank goodness it was only one of her nyla-bones. We were afraid she's caught a leprechaun.) Corned beef and cabbage tonight.

I'm hoping for a little luck of the Irish soon. I think Lady Luck owes me, especially after the Foxwoods Casino losses a couple of weeks ago.

Plus, you know, that whole cancer thing.

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I have a doctor's appointment next week, so I'll give you a physical update then. But I thought I'd give you a mental update now.

Watching and waiting continues to be a strange experience. I have my monthly follow up with the oncologist next Tuesday. I don't expect him to tell me there's any big change. I don't really feel any changes. No "B" symptoms. I have occasional discomfort in my chest and sides. Not pain, by any means. Aches, maybe? I'm trying to lift weights once a week, and it feels like the kind of "day-after" aches that I usually feel, but they last for more than a day. Is it lymph nodes swelling? Who knows. If it is, and the doctor feels them, does that matter? Is it enough for say, "We need to start treatment?" Again, I don't know. It sure doesn't feel like I need to.

News about my condition is still spreading, slowly. I brought Catherine to a birthday party on Saturday, and one of the moms (who also has a son in Peter's class) told me she had heard from her older son, and asked how I was doing. Most people don't say anything about it to me, which is fine. I don't expect people to know what to say, so silence is probably better. For those that do say something, their reactions are very mixed. Some seem devastated (which seems to go away when they see that I'm doing OK). Some have the opposite reaction. One of the moms at school told Isabel that she'd heard a rumor about me, and Isabel explained what was going on -- indolent, slow-growing lymphoma, no treatment yet, etc. The mom was relieved. "Oh -- so he's fine." Well, no, not exactly "fine." I've got cancer.

That's my biggest fear, especially with the kids. I don't want them to become complacent, and think everything is fine. They have no reason to think otherwise, given that we've had to make so very few changes to our lives and to our daily routine. What happens when the inevitable progression comes? Will it be more of a shock to them then, seem more sudden to them, throw them off all over again? Of course, progression of the disease isn't completely inevitable. Some people with follicular NHL never need treatment. Some experience autoremission, where their body somehow figures out how to fight off the cancer on its own. But they're a very small percentage.

I try not to get complacent myself. There are days when I need to remind myself to forget that I have cancer, and move on with what I want to do. Then, on some days, when I'm busy and distracted and I get ahead of myself, I need to remind myself that I have cancer. It's a very strange state of mind to be in. I make long term plans, but I don't let myself get too detailed about them just yet.

The good news is, I've gotten good at being in that strange place. I have bad moments, but not bad days or weeks. I see the watching and waiting period as a time to kind of build up strength and gear up for what will come. I'm not in a stare-down with the cancer; it's more like we're at opposite sides of a crowded room, aware of each other, but agreeing to leave well enough alone. For now. But I know he'll block the door if I try to leave, so we'll need to have a little chat at some point, whether I like it or not.

But mostly, I'm living life as I have been up to this point, but with a couple of exceptions. First, I have fewer doctors appointments now than I've had over the last six months, since I know what's going on. And second, I'm eating more blueberries, since they're really high in antioxidents.

Other than that, it's pretty much the same.

8 comments:

mike said...

"I'm trying to lift weights once a week, and it feels like the kind of "day-after" aches that I usually feel, but they last for more than a day."

Dude - you have to be kidding. A week in between lifting. No wonder you're in pain. My good friend Frankie Lamp says you gotta go back at it with only one day rest.

Come on, if you're gonna "get in the zone" and "get your swell on", you need to hit it harder than once a week. And stay away from those Jaeger Bombs!

By the way, I read Joe's response to your last posting. I'm still a bit puzzled, trying to figure out why they would name a diagnostic medical procedure after an aging, overweight pithcer like Bartolo Colon. :)-

Mike

Anonymous said...

That's one way of driving the snakes out of Ireland. The word must have gotten around that Patrick was a bad ass.

As far as aches and pains - remember you are in your 40s now. The aging thing gets far worse, don't worry. My trick is that if I go out to celebrate my birthday I tell everyone I'm ten years older than I am. So I'll be turning 53 soon. It works out great because then you get all kinds of comments about how hot you look for your age. I'll have 60 year old men all over Portland wondering why they can't meet a hot 53 year old like me.

On the serious side, it's hard to know what to say to the children. You want them to be worry free but the reality doesn't allow that. I don't think any of us have that ideal stress free childhood that we think everyone else does. So my west coast hippie philosophy is embrace it. Every imperfection and major health problem is a part of us. Whether we want it to or not it broadens our horizons, makes us more understanding, and tolerant, (if not on occasion pissed off alternating with feeling helpless) and it will do the same for the children. You and Isy are walking that fine line between allowing the children to be part of your lives and protecting them. I think in the long run they'll appreciate your honesty and sharing the whole you with them and I bet they will find a way better than any adult to help you fight NHL. Although I do think there are too many fights in the NHL and I don't suggest children jumping on the ice and joining in.

Here's a bit of St. Patrick's Trivia:

Corn beef and Cabbage - not Irish

Boston had the first St. Paddy's day parade in the U.S.

St. Patrick was originally kidnapped from England and brought to Ireland as a slave (he tended sheep) until he escaped went back to England, became a Catholic Priest, and returned to Ireland.

The Irish traditionally closed all shops on St. Patrick's Day to attend mass and since it was a celebration they of course had a pint or two after mass. This was great because St. Patrick's Day always falls during lent and since they were celebrating St. Patrick it was OK to celebrate with a drink in his honor even though it was given up for lent.

True - the Irish are very wise.

Sláinte,
Mary-Margaret O'Grady (S-B on other days)

mike said...

Bob - your posting is kind of deep for a joyous occaision like St.Patrick's Day.


http://www.hallmark.com/ECardWeb/ECV.jsp?a=EG5998822780503M253274533Y&product_id=

Only 1 more hour and it will be 5:00 in the Maritime Provinces!

Lymphomaniac said...

Mike --
Nice e-card. John heard me laughing at it, and ran in to see it, and Strudel ate his unguarded sandwich. But he still likes it anyway, because it has the word "hiney" in it.
And maybe a Cleveland Buck can shed some light on the Bartolo Colon thing, but I suspect that he was a pain in the butt.

Mary--
Thanks for the trivia, and the encouragement. We're doing OK. We are being homest with the kids, and I try to be very subtle in reminding them of what's going on. They seem OK now. But I'm a parent; worrying is in the job description.

mike said...

Glad you liked the e-card.

When I heard the leprechaun voice it took me back to St Mary's. The voice sounded like it could have belonged to one of several fellow parishoners. You remember them - they'd never admit that they first touched ground in Dorchester. And they never actually attended BC, they just liked the colors!

No tournmament for the Eagles this year. TOOOOOOOOOO bad. They need to invest that endowment on beter players. Oh, that's illegal isn't it. Never mind.

Go Marquette!

nicole said...

"...And if they don't like my haircut........they're skanks."
"Not now chief...I'm in the zone."


wait all time favorite lines....


"CHEEEEEEESSEEEEE ITSS!!!"
"He just pissed orange soda....did it hurt?!"

Lymphomaniac said...

Mike--
Yesterday against the Yankees, Colon had lasted just two-thirds of an inning, and gave up 4 runs, on 41 pitches (only 21 for strikes). Now do you know why they call it a colonoscopy?

(ISABEL, WHERE'S MY PROTEIN!?)

Joe said...

For those on Bob's side of the family: the O'Grady lass still gets carded on a regular basis; she doesn't have to add ten years to her age to get those kinds of comments.

But she has had to give up standing on her head.

However, I look great for a 60 year old.