Tuesday, April 27, 2021

Oncologist Appointment Today

 I had my 6 month oncologist appointment today. Everything looks good.

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To be honest, after 13 years of living with Follicular Lymphoma, I get a little less worried with every oncologist appointment. I feel like I know my body so well at this point that I have a pretty good sense of when I should be worried. I can tell when something is wrong.

That doesn't mean I'm never worried, of course. Living during a pandemic has had me worried about all kinds of things. This spring, like last spring, I've been dealing with seasonal allergies, and it's easy to think that a cough and an ache might be from Covid, when it's really from a lung full of pollen on a hilly walk. And I've had some new health issues develop in the last year (different from cancer or Covid) that I am very aware of. 

But the cancer symptoms? I feel like I know how they will show up. That doesn't mean I don't worry about them. Just that I don't worry that they'll show up at an oncologist appointment, not the way I would have worried a few years ago.

I got to my appointment early, and was scheduled to get blood work done a half hour before I met Dr. H. The blood work went very quickly, so I was very early to see the doctor. I checked in, and then asked if it would be OK to go to the Peace Garden. The receptionist said that would be fine.

The Peace Garden is a really cool place, and this was the first time I really spent any time there. I see my doctor at a cancer hospital, not a private office. The hospital was built a few years ago with some features that make it nice for cancer patients. One of those is the Peace Garden. It's a small garden on top of a roof at the hospital, with a walking path, some trees, a small stream, and lots of inspirational words painted on rocks and bird houses and other places. Here are a few pictures:

 

As you can maybe see, its; not very big, but it's a nicer place to send a few minutes than in a waiting room.

(Of course, my peace was shattered when the nurse couldn't find me when it was time for my appointment. She seemed a little bit annoyed.)

It took a few minutes for Dr. H to arrive, but I was at peace by that point, so it was OK.

The exam wasn't too long. He said the blood numbers all looked fine. The physical exam didn't turn up any problems with lymph nodes, spleen, or other organs. He was happy about that (and so was I).

We spent some time talking about Covid. He was pleased that I got vaccinated, and that I am doing my best to wear a mask and stay away from people. He says I should keep doing those things, even with  a vaccine ("Covid is going to be with us for a while," he said.) He also told me that, if I am exposed to someone with Covid, I should get tested. And if I test positive, I should call him immediately. He said the hospital had a supply of Covid antibodies that I would probably qualify for. They work best when they are given early.

The lesson I take from that is that, even with a vaccine, it's important to be careful. There are still too many unknowns. And I'm OK with that. My plan has been to continue to be careful, to not take unnecessary risks, and to stay healthy. I'm used to watching and waiting. I can wait a little longer for things to be "normal" again.

I also asked (as I always do) if there was anything exciting happening in the world of Lymphoma. Dr. H is excited about CAR-T being approved for Relapsed and Refractory Follicular Lymphoma. He thinks this will be a major step forward for many patients. 

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So this was a good visit. (It's always a good visit when the oncologist says things look good and there's no progressing cancer.)

I hope all of you get equally good news soon. 

Stay safe and healthy.

 

4 comments:

Anonymous said...

Hey Bob

Glad your checkup went well. Even though Gretchen and I have both had two Moderna vaccine shots, we are still being careful - wear masks, social distancing, washing hands. Seems to be good advice for the flu season, too.

William

Lymphomaniac said...

Thanks, William. Glad you and Gretchen are doing well. Stay healthy.
Bob

J. KELLY said...

Bob,

I am avid follower and I am grateful for all the information that you provide on a daily schedule. I feel really good about being armed with so much information that may prove helpful to me should there be a relapse. I am nearing my last two maintenance treatments. There is great hope for FL patients in new treatments.

I continue to pray for positive results for all FL patients.

Please pray for my wife who is going through cancer treatments for bile duct cancer. She is no longer responding to chemo and must move to radiation. Dealing with cancer is one thing but see your spouse go through a more difficult type is so unbelievable. We are in deep faith and with God.

Take care, and thank you again for not only your courage but the ability to rise above and help others who face the Emperor of all Maladies, "Cancer."

John

Lymphomaniac said...

Hi John. Thanks for reading. I'm glad the blog has been helpful.
And I'm sorry to hear about your wife's diagnosis. I had to watch both of may parents get cancer diagnoses after mine. I'm sure seeing a spouse go through things must be much more difficult still. I hope the radiation helps. We'll keep her in her prayers.
Take care.
Bob